Featured

The Patients Rising Podcast

Every week, Patients Rising Podcast will dig deep into the week’s healthcare policy issues that impact you.

Your Hosts





Terry Wilcox

Host





Kate Pecora

Corespondent





Robert M. Goldberg, PhD

Host

About the Patients Rising Podcast

For years, Patients Rising has given patients the information they need about health policy developments from Washington, all while giving them a voice in the nation’s capital.

Now we are bringing the news to you in a format that’s easy to take with you wherever you go. Every week, Patients Rising Podcast will dig deep into the week’s healthcare policy issues that impact you. 

Each episode features the latest news, in-depth discussions with policymakers and patient advocates, and updates from patient correspondents around the country.

Subscribe - don't Miss an Episode

Latest Episodes

Episode 30: The vaccine finish line

Patients Rising Podcast

Ep 30: The Vaccine Finish Line

Show Notes

The finish line for the vaccine race is just around the corner. Terry and Dr. Bob react to vaccine developments and respond to ICER’s recent attacks.

Plus, the second part of our interview with Dr. Robert Popovian gives us the latest on Operation War Speed, President Trump’s executive orders and the impact on drug costs for patients. And Kate brings us an inside look at a clinical trial from participant Ian Haydon.

Guest:

Robert Popovian, PharmD.

VP of U.S. Government Relations, Pfizer Inc.

Robert Popovian is currently Vice President, U.S. Government Relations at Pfizer Inc. where he leads the advocacy function in the U.S. Robert brings over two decades of experience in numerous facets of the biopharmaceutical and health care industry with a strong track record of expertise in Health Care Policy and Economics, Government Relations, Medical Affairs, and Strategic Planning.

Robert has published and presented extensively on the impact of biopharmaceuticals and health policies on health care costs and clinical outcomes, including authorship in clinical and healthcare delivery journals, and is a published expert source in First Word, The Hill, Los Angeles Times, USA Today, Pink Sheet, Managed Healthcare Executive and Bloomberg News amongst many others.

He also writes a regularly published column in Morning Consult regarding health policy and economic issues relevant to the biopharmaceutical industry. He is a frequent speaker at healthcare policy and medical conferences on topics such as payment and delivery reform, pricing, reimbursement, biosimilars, biopharmaceutical innovation, and health economics. He currently serves on the Board of Councilors of the University of Southern California, School of Pharmacy and Board of Advisors for Capital RX.

He is one of the few researchers who has studied and published both clinical and policy related economic analysis as well as one of a handful who have studied and published empirical data regarding emerging payment models in the U.S. healthcare system and for biopharmaceutical reimbursement. He also was one of the first to secure inclusion of health outcomes data regarding labeled indication of a biopharmaceutical.

Robert completed his Doctorate in Pharmacy and Master of Science in Pharmaceutical Economics and Policy degrees at the University of Southern California with honors. He also has completed a residency in Pharmacy Practice/Adult Internal Medicine and Infectious Diseases at the Los Angeles County – University of Southern California Hospital and a fellowship in Pharmaceutical Economics and Policy at University of Southern California.

Robert is married to Maylin Megran Popovian. They have two daughters, Katrina and Natalya. They have residences both in Los Angeles, CA and Washington, DC.

Hosts:

Terry Wilcox, Executive Director, Patients Rising

Dr. Robert Goldberg, “Dr. Bob”, Co-Founder and Vice President of the Center for Medicine in the Public Interest.

Kate Pecora, Field Correspondent

 

Links:

Dr. Robert Popovian

Voices from the Pandemic: Ian Haydon

The Federal Program That Keeps Insulin Prices High by Adam J. Fein

How Lilly is Helping Discounts Reach People with Diabetes in 340 B

Contributions of Public Health, Pharmaceuticals, and Other Medical Care to US Life Expectancy Changes, 1990-2015

How ‘Emergency Use’ Can Help Roll Out a COVID Vaccine

Pfizer Opted Not to Take Fed Money to ‘Liberate Scientists from any Bureaucracy’

Terry’s Twitter Response

Patients Rising Concierge

Need help?

The successful patient is one who can get what they need when they need it. We all know insurance slows us down, so why not take matters into your own hands. Our Navigator is an online tool that allows you to search a massive network of health-related resources using your zip code so you get local results. Get proactive and become a more successful patient right now at PatientsRisingConcierge.org

Have a question or comment about the show, want to suggest a show topic or share your story as a patient correspondent?

Drop us a line: podcast@patientsrising.org

The views and opinions expressed herein are those of the guest(s)/ author(s) and do not reflect the official policy or position of Patients Rising.

 

Episode 29: What goes into drug prices

Patients Rising Podcast

Ep 29:  What Goes Into Drug Prices

Show Notes

Get an inside look into the drug supply chain and the factors that impact your bill at the pharmacy counter. Dr. Robert Popovian, VP of Government Relations at Pfizer, joins Terry to discuss how benefit design and rebates impact the cost of your medicine. Plus Kate speaks with Jackie Price, a double lung transplant recipient, on cystic fibrosis and the importance of organ donors. 

Guest:

Robert Popovian, PharmD.

VP of U.S. Government Relations, Pfizer Inc. 

Robert Popovian is currently Vice President, U.S. Government Relations at Pfizer Inc. where he leads the advocacy function in the U.S. Robert brings over two decades of experience in numerous facets of the biopharmaceutical and health care industry with a strong track record of expertise in Health Care Policy and Economics, Government Relations, Medical Affairs, and Strategic Planning.

Robert has published and presented extensively on the impact of biopharmaceuticals and health policies on health care costs and clinical outcomes, including authorship in clinical and healthcare delivery journals, and is a published expert source in First Word, The Hill, Los Angeles Times, USA Today, Pink Sheet, Managed Healthcare Executive and Bloomberg News amongst many others.

He also writes a regularly published column in Morning Consult regarding health policy and economic issues relevant to the biopharmaceutical industry. He is a frequent speaker at healthcare policy and medical conferences on topics such as payment and delivery reform, pricing, reimbursement, biosimilars, biopharmaceutical innovation, and health economics. He currently serves on the Board of Councilors of the University of Southern California, School of Pharmacy and Board of Advisors for Capital RX.

He is one of the few researchers who has studied and published both clinical and policy related economic analysis as well as one of a handful who have studied and published empirical data regarding emerging payment models in the U.S. healthcare system and for biopharmaceutical reimbursement. He also was one of the first to secure inclusion of health outcomes data regarding labeled indication of a biopharmaceutical.

Robert completed his Doctorate in Pharmacy and Master of Science in Pharmaceutical Economics and Policy degrees at the University of Southern California with honors. He also has completed a residency in Pharmacy Practice/Adult Internal Medicine and Infectious Diseases at the Los Angeles County – University of Southern California Hospital and a fellowship in Pharmaceutical Economics and Policy at University of Southern California.

Robert is married to Maylin Megran Popovian. They have two daughters, Katrina and Natalya. They have residences both in Los Angeles, CA and Washington, DC.

Hosts:

Terry Wilcox, Executive Director, Patients Rising

Dr. Robert Goldberg, “Dr. Bob”, Co-Founder and Vice President of the Center for Medicine in the Public Interest.

Kate Pecora, Field Correspondent 

Links:

Dr. Robert Popovian

Patients Rising Concierge 

Need help?

The successful patient is one who can get what they need when they need it. We all know insurance slows us down, so why not take matters into your own hands. Our Navigator is an online tool that allows you to search a massive network of health-related resources using your zip code so you get local results. Get proactive and become a more successful patient right now at PatientsRisingConcierge.org

Have a question or comment about the show, want to suggest a show topic or share your story as a patient correspondent?

Drop us a line: podcast@patientsrising.org

The views and opinions expressed herein are those of the guest(s)/ author(s) and do not reflect the official policy or position of Patients Rising.

Episode 28: Chronic Disease in the Workplace

Patients Rising Podcast

Ep 28:  

Show Notes

Title: Chronic Disease in the Workplace

In celebration of Labor Day, we look at a business that is empowering the chronic disease community. Kate interviews Keisha Greaves, founder of the clothing brand Girls Chronically Rock. Plus, Terry and Dr. Bob discuss a potential COVID-19 vaccine by fall and provide an update on Erica Dean’s canceled ICER speech.

Guest: 

Keisha Greaves

Owner, Girls Chronically Rock

Keisha Greaves is a motivational speaker, the founder of Girls Chronically Rock, and the Massachusetts State Ambassador for the Muscular Dystrophy Association (MDA). Girls Chronically Rock offers inspired fashion celebrating muscular dystrophy and other chronic illnesses.

Over the past few years, Keisha has been featured in Improper Bostonian, Boston Voyager, Herself 360, Liz on Biz, among other outlets on and offline. She’s lent her voice

to audiences at the Spaulding Rehabilitation Center in Charlestown, Massachusetts General Hospital, the Boston Muscle Walk, local “Fill the Boot” events, Cambridge City Hall, and most recently, Girl’s Night Out for Muscular Dystrophy, a Boston-area fundraising event held by

NextonScene. Keisha spearheaded fruitful collaborations with other notable fashion influencers which resulted in thousands of dollars raised for MDA, the most successful collaborations being with renowned designer Sara Campbell and Althea Blackford, the woman behind Caribbean Fashion Week.

One of Keisha’s proudest moments happened after working and meeting with Massachusetts Governor Charlie Baker: Keisha got September 30 officially proclaimed Limb-Girdle Muscular Dystrophy Awareness Day. She also received the proclamation from Mayor Marc McGovern from the city of Cambridge.

Keisha earned her bachelor’s degree in fashion design and merchandising from Framingham State College, and her master’s in business management from Cambridge College.

Hosts:

Terry Wilcox, Executive Director, Patients Rising

Dr. Robert Goldberg, “Dr. Bob”, Co-Founder and Vice President of the Center for Medicine in the Public Interest.

Kate Pecora, Field Correspondent

Links:

Girls Chronically Rock 

Keisha Greaves 

Owning Personal Health Records is the Key to Medical Innovation, by Dr. Robert Goldberg

 

Patients Rising Concierge

Need help?

The successful patient is one who can get what they need when they need it. We all know insurance slows us down, so why not take matters into your own hands. Our Navigator is an online tool that allows you to search a massive network of health-related resources using your zip code so you get local results. Get proactive and become a more successful patient right now at PatientsRisingConcierge.org

 

Have a question or comment about the show, want to suggest a show topic or share your story as a patient correspondent?

 

Drop us a line: podcast@patientsrising.org

 

The views and opinions expressed herein are those of the guest(s)/ author(s) and do not reflect the official policy or position of Patients Rising.

 

Episode 27: Finding Cures Faster

Patients Rising Podcast

Ep 27:  Finding Cures Faster

Show Notes

The lives of chronic and rare disease patients depend on the progress of medical discoveries. Dr. Gary Michelson explains how investment in innovative, high-risk research will improve patient outcomes. Plus hear from Lindsey Kaizer, who depends on the U.S. Postal Service to deliver medication for her narcolepsy.

Gary Michelson, M.D.

Founder, Michelson Medical Research Foundation

Dr. Gary Michelson is an orthopedic spinal surgeon, inventor, and philanthropist. He is an accomplished surgeon, having made numerous contributions to the medical field through his research and development of 950 patents.

After over two decades of medical practice, Dr. Michelson began several philanthropic efforts. In 1995, he founded The Michelson Medical Research Foundation (MMRF), which invests in innovative research projects to improve patient outcomes across the world.

Through MMRF, Dr. Michelson has been involved with a variety of philanthropic projects, including the Michelson Center for Convergent Bioscience at USC, Michelson Ethical Research and Education, Michelson Prizes for Human Immunology and Vaccine Research (HPV), and more.

Dr. Michelson received his medical degree from Hahnemann Medical College of Drexel University, and his bachelor’s degree in biology and psychology from Temple University in Philadelphia. 

Hosts:

Terry Wilcox, Executive Director, Patients Rising

Dr. Robert Goldberg, “Dr. Bob,” Co-Founder and Vice President of the Center for Medicine in the Public Interest.

Kate Pecora, Field Correspondent

Links: 

Michelson Medical Research Foundation

 America’s Needed Medical Revolution

 Lindsey Kaizer

Patients Rising Concierge

Need help?

The successful patient is one who can get what they need when they need it. We all know insurance slows us down, so why not take matters into your own hands. Our Navigator is an online tool that allows you to search a massive network of health-related resources using your zip code so you get local results. Get proactive and become a more successful patient right now at PatientsRisingConcierge.org

 Have a question or comment about the show, want to suggest a show topic or share your story as a patient correspondent?

 Drop us a line: podcast@patientsrising.org

The views and opinions expressed herein are those of the guest(s)/ author(s) and do not reflect the official policy or position of Patients Rising.

 

Episode 26: Calculating the value of patient lives

Patients Rising Podcast

Ep 26:  Calculating the Value of Patient Lives

Show Notes

ICER’s pricing models assess the value of a drug and whether your life is worth paying for it. Health economist Dr. Paul Langley explains how ICER’s recommendations devalue patient lives and create barriers to accessible treatments. Dr. Bob and Terry examine the high profits recently reported by health insurance companies, and Kate speaks with Jen Hepworth on accessing cystic fibrosis treatments for her daughter. 

Paul C. Langley, Ph.D.

Health economist and adjunct professor in the College of Pharmacy, University of Minnesota

Dr. Paul C. Langley is a health economist with an extensive background in drug evaluation for pharmacy and therapeutics companies. In the early 1990’s, Dr. Langley evaluated the economics for the introduction of new pharmaceutical products. In Australia, he worked to analyze cost-effectiveness cases brought forward by pharmaceutical companies introducing new products until 1994.

After moving to America, Dr. Langley produced numerous research projects regarding evaluation techniques for the introduction of new pharmaceutical and therapeutic products to the United States. In 1997, he also established the Center for Pharmaceutical Economics at the University of Colorado.

From 1999 to 2005, Dr. Langley used his global experience and perspective in his role as International Manager of Health Economics at 3M Pharmaceuticals.

Dr. Langley’s research focuses on issues of population health. His recent publications have analyzed how ICER’s cost-effectiveness claims in the U.S. do not meet scientific standards.

Currently, Dr. Langley is the director of Maimon Research LLC, an Arizona-based health economics consulting and research company. He also works as an adjunct professor at the University of Minnesota’s College of Pharmacy. Dr. Langley is currently an Advisory Board Member and Research Director for the Institute of Patient Access.

Dr. Langley earned his bachelor’s degree in economics from the University of Hull in the U.K., his master’s degree from Carleton University, and his doctorate degree from Queen’s University in Canada.

Hosts:

Terry Wilcox, Executive Director, Patients Rising

Dr. Robert Goldberg, “Dr. Bob”, Co-Founder and Vice President of the Center for Medicine in the Public Interest.

Kate Pecora, Field Correspondent

Links:

 Maimon Research LLC

 Langley PC. More Unnecessary Imaginary Worlds – Part 3: Cystic Fibrosis and the Institute for Clinical and Economic Review’s Draft Evidence Report. Inov Pharm. 2020;11(1): No. 15

 Langley P. Value Assessment in Cystic Fibrosis: ICER’s Rejection of the Axioms of Fundamental Measurement. Inov Pharm. 2020;11(2):No. 8

Patients Rising Concierge

Need help?

The successful patient is one who can get what they need when they need it. We all know insurance slows us down, so why not take matters into your own hands. Our Navigator is an online tool that allows you to search a massive network of health-related resources using your zip code so you get local results. Get proactive and become a more successful patient right now at PatientsRisingConcierge.org

 Have a question or comment about the show, want to suggest a show topic or share your story as a patient correspondent?

 Drop us a line: podcast@patientsrising.org

The views and opinions expressed herein are those of the guest(s)/ author(s) and do not reflect the official policy or position of Patients Rising.

You'll receive updates about new resources, patient stories and insights, advocacy work, and alerts about patient-support events.
The latest about patient advocacy

Join our Email List

Get notified about new stories and resources to empower patients and caregivers.