PATIENT LEADERSHIP IN HEALTH POLICY

Equipping Patients to Navigate and Influence Health Policy

Patients Rising delivers structured policy education, leadership development, and strategic engagement opportunities that connect patient experiences directly to the policy decision-makers who shape healthcare.

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PATIENT LEADERSHIP PLATFORM

A National Platform for Patient Leadership

As a nationwide hub for patient advocacy, Patients Rising provides the tools, training, and connections patients and caregivers need to turn personal healthcare experiences into effective advocacy that drives meaningful policy change at every level.

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PATIENT ACTION CENTER

Take Action on Our Latest Campaigns

Healthcare policy decisions are happening now at the federal and state levels.
These campaigns give patients structured, informed ways to engage.

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340B Rebate Model: Public Comments Open

HRSA is reviewing changes to how hospital drug discounts are tracked. Share your experience and explain why transparency and patient benefit must come first.

Submit by: April 20th

Submit a Comment

Medicare Drug Price Negotiation

Major pricing decisions are being made at CMS. Patients must have a voice in how these policies are designed and implemented — especially when access to treatments is at stake.

Submit Written Comments by: March 1st

Register to Speak with CMS by: March 6th

Learn More Now

Make 340B Work for Patients in the States

States are advancing policies that affect hospital drug discounts and patient access. Engage locally to ensure accountability and patient-first implementation.

See State Campaigns

PREPARED ENGAGEMENT

From Understanding to Action

We move beyond awareness. Through issue briefings, leadership training, and testimony preparation, Patients Rising prepares patients to participate thoughtfully and effectively in healthcare decision-making.

Explore Advocacy Training

“Becoming a patient advocate, sharing my story, and connecting with others has shown me that even in life’s darkest moments, something beautiful can grow.”

– Amy

Patient Advocate

“Every story matters, and if sharing mine helps even one person feel seen, supported, or empowered to speak up, that’s why I keep going.”

– Valarie

Patient Advocate

Tools for Effective Patient Advocacy

Our advocacy tools are designed to help patients understand policy, communicate clearly, and take meaningful action. From storytelling guides to policy toolkits, each resource is built to support engagement and impact.

Become an Advocate

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Connect & Support

A Community Built For Patient Advocates

Connect with patients, caregivers, and advocates who are focused on learning, sharing, and engaging constructively in healthcare policy. This is a private space for informed conversation, mutual support, and practical collaboration.

Join Our Community

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Stories That Matter

Patient Stories With Policy Impact

Patients Rising shares patient stories that shine a light on how healthcare policy works and where it fails. These stories highlight real barriers to care, from coverage denials to access delays, and help ground policy discussions in patient realities.

Read Stories

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Learn Advocacy

Legislative Education & Advocate Development (LEAD)

LEAD is Patients Rising’s advocacy training program for patients and caregivers who want to engage effectively in healthcare policy. The program focuses on policy fundamentals, effective communication, and practical skills for engaging decision-makers.

Explore Education

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Gather & Engage

Advocacy Events

Patients Rising brings advocates together through briefings, trainings, and live events — including the Rise Awards, State of the Patient Summit, and advocacy fly-ins — that connect learning to policy engagement.

Start Learning

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Policy Action

Issues That Shape Patient Care

Explore the healthcare policy issues affecting patient access, affordability, and transparency to see where informed action can make a difference at the state and federal level.

See Priorities

Support Patient Advocacy

Partner With Purpose

Your sponsorship helps fuel the programs that educate, empower, and amplify patient voices nationwide. Join us in shaping a more equitable, accessible healthcare system that listens to the people it serves.

Become a Member

Backed by Trust

Supported by Advocacy
Leaders Nationwide

Patients Rising partners with respected advocacy groups, nonprofits, and healthcare leaders to fight for patient-first policy and amplify real stories that drive change.

Join the Movement

Advocacy Begins
With You

Whether you’re navigating medical bills, battling denials, or pushing for better care, Patients Rising is here to back you up. Join one of the nation’s most active advocacy groups and connect with others who are turning experience into action. It’s free, flexible, and designed for the people we serve.