Turning Patient Experience into Policy Impact
Patients Rising trains patients and caregivers to bring their real struggles into Congress, state legislatures, and regulatory agencies — and turn them into policies that work for everyone.
Healthcare Policy Without Patients Misses the Mark
Coverage denials. Surprise bills. Prior authorizations that stretch into months. Hours on the phone fighting to get care covered. These aren't policy abstractions — they're the daily reality of being sick in America, and they're invisible to most of the people writing the rules.
We train patients and caregivers to change that.
Through legislative hearings, regulatory comments, and direct meetings with lawmakers, our advocates put patient specifics in front of the people making the decisions.
Take Action on Our Latest Campaigns
Healthcare policy decisions are happening now at the federal and state levels.
These campaigns give patients structured, informed ways to engage.
340B Rebate Model
Patients Rising has submitted a formal comment letter to HRSA calling for transparency, accountability, and measurable patient benefit in the 340B program.
From Understanding to Action
We move beyond awareness. Through issue briefings, leadership training, and testimony preparation, Patients Rising prepares patients to participate thoughtfully and effectively in healthcare decision-making.
Structured Tools for Patient Leadership
Connect & Support
A Network of Informed Patient Leaders
Our private community connects patients and caregivers who want to engage healthcare policy with focus and discipline. Members exchange insight, refine messaging, and participate in coordinated advocacy efforts. This is a space for learning, strategy, and practical collaboration.
Stories That Matter
Patient Stories With Policy Impact
Patients Rising shares patient stories that shine a light on how healthcare policy works and where it fails. These stories highlight real barriers to care, from coverage denials to access delays, and help ground policy discussions in patient realities.
Learn Advocacy
Legislative Education & Advocate Development (LEAD)
LEAD is Patients Rising’s advocacy training program for patients and caregivers who want to engage effectively in healthcare policy. The program focuses on policy fundamentals, effective communication, and practical skills for engaging decision-makers.
Gather & Engage
Advocacy Events
Patients Rising brings advocates together through briefings, trainings, and live events — including the Rise Awards, State of the Patient Summit, and advocacy fly-ins — that connect learning to policy engagement.
Policy Action
Issues That Shape Patient Care
Explore the healthcare policy issues affecting patient access, affordability, and transparency to see where informed action can make a difference at the state and federal level.
Partner With Purpose
Your sponsorship helps fuel the programs that educate, empower, and amplify patient voices nationwide. Join us in shaping a more equitable, accessible healthcare system that listens to the people it serves.
News That Impacts Patients
Advocacy Begins
With You
Whether you’re navigating medical bills, battling denials, or pushing for better care, Patients Rising is here to back you up. Join one of the nation’s most active advocacy groups and connect with others who are turning experience into action. It’s free, flexible, and designed for the people we serve.
