6/23/2017 by Editor
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30 million Americans live with rare diseases.
Rare disease patients have an important message to health care leaders and policymakers.
“We’re here. We’re ready. We’re willing,” says Paul Melmeyer with the National Organization for Rare Disorders.
Spread the Word:
Rare conditions are often misdiagnosed as other health...
Rare Diseases and Orphan Drugs: A Life-Saving Partnership...
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