Innovation has radically changed what it means to live with multiple sclerosis. But, many patients must now fight to gain access to these innovative treatments.
“They take you and put you on hold. It’s limbo,” explains author Jamie Tripp Utitus, whose writing career began with an MS diagnosis. “We would get sent to an operator in India who would hang up on us. Hang up… You should be cured by now. Beep.”
“It’s just so short-sighted to say we’re not going to give you the medication that’s going to keep you active and involved in society,” points out retired neurologist Seth Morgan, who gave up practicing after his MS diagnosis. “If you think about it, it’s just so logically that you would want keep those people active and in society and productive and not dependent on everyone else.”
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