10/21/2020 by Share Your Story

Patient Input Has Value…$100 an Hour

No one understands chronic illness like those who live with it. That unique expertise has value. Why not complete patient surveys for cash?


Nobody you meet is going to know your disease as well as you do. That’s why the minds who are trying to develop new treatments, practices and devices know to ask YOU. That’s how opportunities for you to do patient surveys for cash came about. And your expertise is valuable.

OUR PARTNER, RARE PATIENT VOICE

One of our partners, Rare Patient Voice, hosts surveys. They’ve been doing this since 2013. Because they value the time and effort of patients, and their unique point of view, they pay patients $100 an hour. When they work with researchers, they make that clear up front. If the researcher doesn’t value the patient fairly, they won’t work with them. Rare Patient Voice has been hosting patients surveys for cash for the last seven years and in that time has paid patients over $4.8 million.

WHAT KINDS OF SURVEYS ARE THEY?

The surveys are being run by researchers who are developing products or services. All kinds of medical conditions come up, both for patients and for caregivers.
Surveys can be:
  • online surveys
  • phone interviews
  • online focus groups
  • video calls
  • in-person interviews
Surveys are often seeking patients with specific diagnoses, but not always. Some surveys seek the person in the role of caregiver for specific diagnoses as well.

WHY DO IT?

For the EDM…
Empowerment – sharing your voice with people who really need/want to hear it
Development – guide developers’ thinking, based on your experience
Money – your time and expertise is valued (at $100/hour)
Let’s be frank…it’s not easy living with a chronic illness. The experiences that make up so much of your life are terrible, but they are good teachers. Chronic illness patients make great advocates, in part because they learn how to communicate their life in ways no one else can.
Patients Rising has run surveys as well, but we normally can’t compensate people at such a rate. So, we’re especially happy to be able to share this opportunity with you.

HOW YOU GET PAID?

We’re not kidding when we say you’ll complete patient surveys for cash. When you qualify and complete a survey, you’ll be paid by check. That’s better than a gift card. It gives you the most flexibility.

HOW DO YOU LEARN ABOUT SURVEYS?

You’ll get emails a couple times a month with opportunities; some specific, some general. Also, once you’ve signed up, you can go to the website and look for “Study Opportunities”.

HOW DO YOU SIGN UP?


If you ever have any questions for us here at Patients Rising, you can always reach us by email at AskUsAnything@patientsrising.org

 


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