Collective action is the cornerstone of how Patients Rising addresses the education and advocacy needs of patients seeking access to quality care for a serious disease or illness. We work in partnership with individuals, non-profit organizations, professional societies, and members of industry that are raising awareness, speaking out for patients and advocating for policies that align with Patients Rising’s founding mission:
We fight for access to vital therapies and services for patients with life-threatening and chronic diseases. If a patient needs it to survive and live a better quality, more productive life -- we believe access to those treatments and creating a balanced dialogue in the national conversation around these issues is essential.
Founded in 2015, Patients Rising is a Washington, DC-based 501(c) (3) non-profit organization that works to fill a void in the debate over patient access to quality medical care. Our mission is to speak for patients, especially those with life-threatening diseases and chronic conditions, regarding the matters that most affect them – from access to state-of-the-art diagnostics and genetic testing to being treated with the medicines prescribed by their physician as the most effective for their specific disease and individual characteristics. As such, Patients Rising works in collaboration with professional societies, other advocacy organizations and think tanks to amplify the patient’s voice on such issues as value frameworks, clinical pathways, and restrictive insurer practices that limit or delay access to quality care. We also articulate the patient’s voice in advocating for policies that ensure patients are able to participate in a robust decision-making process with their health care team on the most appropriate treatment options based on their preferences and needs.
To achieve these goals, Patients Rising receives unrestricted mission grants from a number of biopharmaceutical companies and trade associations, which fund the organization’s programs and initiatives. None of the organization’s programs or positions are influenced in any way by our funders. Patients Rising also works in partnership with a number of like-minded non-profit organizations to reach patients, caregivers, health professionals and policymakers through a range of communications channels. This allows the organization to have a broader reach and magnify the impact of our mission grants.
Our partners and supporters enhance our ability to help patients across disease states, strengthen our conversations with stakeholders in all sectors of the healthcare system – patients, caregivers, health professionals, researchers, payers, innovators, regulators and legislators – and create the multiplier effect so the voices of patients will be heard.
In essence, our partners and supporters are valued members of the Patients Rising community. Their generous financial and in-kind support allowed Patients Rising to open its doors in 2015 and continues to help us advocate for sensible approaches that will ensure patients regardless of who they are and where they live have access to the right treatment, right now. For more information about partnering or supporting Patients Rising mission and programs, please contact Terry Wilcox: Ph: 202.904.2462 | Email
The Bonnie J. Addario Lung Cancer Foundation (ALCF) is one of the largest philanthropies (patient-founded, patient-focused, and patient-driven) devoted exclusively to eradicating Lung Cancer through research, early detection, education, and treatment. The Foundation’s goal is to work with a diverse group of physicians, organizations, industry partners, individuals, patients, survivors, and their families to identify solutions and make timely and meaningful change and turn lung cancer into a chronically managed disease by 2023.
The Alliance for the Adoption of Innovations in Medicine (Aimed Alliance) is a tax-exempt, not-for-profit organization that promotes the improvement of health care in the United States by supporting the development of and access to safe and novel, evidence-based treatments and technologies.
Cancer Connect is the largest social community and cancer information resource exclusively for cancer patients. CancerConnect is accessed directly at CancerConnect.com or from cancer care provider and advocate websites including: Dana Farber, Memorial Sloan Kettering Cancer Center, Roswell Park Cancer Institute, The OSU James Cancer Institute, The National Ovarian Cancer Coalition, The MPNRF, and other leading advocates and cancer centers.
The Community Oncology Alliance (COA) is a non-profit organization dedicated to advocating for community oncology practices and, most importantly, the patients they serve. COA is the only organization dedicated solely to community oncology where close to 70% of Americans with cancer are treated.
The International Association for the Study of Lung Cancer (IASLC) is the only global organization dedicated to the study of lung cancer. Founded in 1974, the association's membership includes more than 5,000 lung cancer specialists in over 100 countries.
MY LIFE IS WORTH IT is an online campaign created to fight for patients because they want, need and deserve to be included in discussions linking cost issues to their care.
Patients Alliance for Drug Safety Protections is a coalition of national public health, patient advocacy, health professional and disease organizations working collaboratively to raise awareness of the importance of REMS as a tool to advance patient safety and protect public health.
We’re proud to partner with Clara, a platform empowering patients and caregivers by connecting them to trials that could offer a breakthrough treatment option and bring cures closer to reality. Visit www.clarahealth.com to learn more and search for a trial.
Amgen is one of the world’s leading biotechnology companies. Amgen is a values-based company, deeply rooted in science and innovation to transform new ideas and discoveries into medicines for patients with serious illnesses.
Bristol-Myers Squibb is a global BioPharma company firmly focused on its mission to discover, develop and deliver innovative medicines to patients with serious diseases.
Celgene Corporation, headquartered in Summit, New Jersey, is a patient-focused integrated global biopharmaceutical company engaged primarily in the discovery, development and commercialization of novel therapies for the treatment of cancer and inflammatory diseases through gene and protein regulation.
Founded more than 35 years ago, Genentech is a leading biotechnology company that discovers, develops, manufactures and commercializes medicines to treat patients with serious or life-threatening medical conditions. The company is a member of the Roche Group.
Janssen United States employs more than 30,000 people working hard to prevent, treat, cure and stop some of the most devastating and complex diseases of our time. From heart disease to HIV, Alzheimer’s disease to cancer, they are committed to issues that touch everyone’s lives.
The world's largest research-based pharmaceutical company. Pfizer Inc discovers, develops, manufactures and markets leading prescription medicines and many of the world's best-known consumer brands.
WOMEN Magazine is a quarterly print publication and a comprehensive online health and wellness resources for women. Whether you are interested in learning more about common health conditions, exploring nutrition and exercise topics, or educating yourself about issues related to cancer treatment or other specific health concerns, you’ll find what you’re looking for at AWoman’sHealth. By integrating the most recent research on a broad variety of health topics with personal stories and inspiration from real women, we deliver a unique resource dedicated to empowering and informing our readers.