Kyra's Story

I’m Kyra and 28 years old. Up until a few months ago I went through misdiagnosis and the wrong treatments for years. I was finally correctly diagnosed with a rare auto inflammatory condition called TRAPS. It has an acronym for a reason. I am also finally receiving the correct treatment and seeing improvements in my quality of life. Also with this correct diagnosis my cardiac symptoms are finally improving because in the past year and half alone I’ve had six cardiac surgeries. I would have never gotten to this place without advocating for myself with doctors every step of the way. Even if that meant on to the next doctor. I hope others can take from this that it is worth it to advocate for yourself. It is your life. First with my corgi nurse Alice knowing I dont need to be up doing things so she just sat on me. Second is my husband and I on our second wedding anniversary.

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