On June 4th, 2016 Patients Rising co-founder and policy director, Jonathan Wilcox brought together patients and patient advocates, as well as nationally acclaimed policy, legal and medical professionals at the Chicago Symphony Center to learn more about how patients can survive the attacks on their treatments. This is a must-see video for patients and caregivers navigating a complex system of barriers to access including insurance denials, complicated formularies, step therapy and other policies patients often find themselves up against when they are at their weakest.
Co-Founder and Policy Director, Patients Rising
Jonathan leads the strategic and policy direction for Patients Rising, a non-profit advocacy organization that fights for access to vital therapies and services for patients with life-threatening and chronic diseases. Jonathan has been a featured on-air commentator for ABC News, NBC News, Fox News Channel, CNN, several national radio programs and international networks. His editorial commentaries have been featured in Investor’s Business Daily, National Review, Sacramento Bee, Los Angeles Daily News, San Francisco Chronicle, Washington Times, Houston Chronicle, Dallas Morning News and Cleveland Plain Dealer.
Confirmed Panelists and Guests:
E. Marcus Davis, Esq
Diagnosed with Smoldering Myeloma
In April 2013 a routine physical showed elevated protein levels in his blood. A month later, returning from a trip abroad he was diagnosed with early stage multiple myeloma, categorized as high risk smoldering myeloma, a cancer of cells in the bone marrow. That same year an international study reported clinical benefits to treating patients with this diagnosis instead of waiting until the disease progressed to a more serious state. But Marc faced several hurdles which we learn more about.
Warren H. Fong, MD
President, Medical Oncology Association of Southern California (MOASC)
Dr. Fong, hematologist and oncologist, will discuss patient access barriers to the new and innovative cancer treatments in the community setting as well as insurance barriers and how they hinder the doctor-patient relationship.
Robert Goldberg, PhD
Co-Founder and Vice-President, Center for Medicine in the Public Interest (CMPI)
An expert on Medicare reform, comparative effectiveness and FDA’s Critical Path Initiative, Dr. Goldberg co-founded the non-profit, non-partisan organization, CMPI, to promote innovative solutions that advance medical progress, reduce health disparities, extend life and make health care more affordable, preventive and patient-centered. Dr. Goldberg will share insights from his new white paper on how new spending proposals limit care for patients with serious diseases and discuss an investigation by the U.S. Attorney for the Southern District of New York into rebate schemes that are not benefiting patients.
Jennifer Hinkel, MSc
Health Economist, Survivor, Patient Advocate
Jennifer Hinkel is a Partner at McGivney Global Advisors, strategic consultants to biotech, pharma, diagnostics and health IT companies. Diagnosed with Hodgkin’s Lymphoma in 1998 at the age of 17, she achieved a full remission after treatment with surgery and chemotherapy. Her cancer experience led to the creation of Resilience Racing, the first competitive sailing program specifically for cancer survivors. During the panel discussion Jennifer will share her views on the current debate over healthcare spending as both an economist and a cancer survivor.
Charles H. Weaver, MD, is a pioneering stem cell cancer researcher, developer of the modern practice management industry, and early advocate and adopter of digital media and social media solutions to enhance patient education and engagement. Dr. Weaver will reveal the results of a new poll about cancer patients and their experiences with insurance obstacles including treatment delays and treatment denials.
Stacey L. Worthy, Esq.
Aimed Alliance, Director of Public Policy
Ms. Worthy manages advocacy and policy initiatives for Aimed Alliance, a non-profit organization that brings consumer, not-for-profit, government and industry leaders together to share information, set priorities, and collaborates toward mutual goals of improving health care through innovation. During the panel discussion, she will reveal why many of the obstacles to treatments from the insurance industry, as well as proposals to limit care based on cost-measures, are actually breaking the law.
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