Advocacy


Advocacy Disease drea carbone MG Walk myasthenia gravis

Myasthenia Gravis Support Alive and Well

Drea Carbone, an accomplished advocate, tells us about how...
Advocacy Disability ableism disability rights

Disabled America – Claim Your Seat At The...

We’re in the 2020 election cycle. As we get to know...
Advocacy

So Much Greater than Just Face Value

I am here to share some lessons I have learned as an...
Advocacy Patient Story Ehlers-Danlos Syndrome

Ask Us – Ehlers Danlos Syndrome

I got a call from a woman named Julie who was, as she put...
Advocacy IBD Inflammatory Bowel Disease

Walking In Their Shoes: Inflammatory Bowel Disease

WALKING IN THE THEIR SHOES: INFLAMMATORY BOWEL DISEASE by...
Advocacy

Why Patients Win with Physician-Scholar-Survivor...

Cancer survivor Scott Gottlieb will fight for patients as...
Advocacy Patient Empowerment

14 Ways to Become a Patient Advocate

Charis: Patient, Chronic Disease Advocate & Blogger at...
Advocacy

21st Century Cures Act: First steps toward...

21st Century Cures Act: What would the legislation do?...
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