Collective action is the cornerstone of how Patients Rising addresses the education and advocacy needs of patients seeking access to quality care for a serious disease or illness. We work in partnership with individuals, non-profit organizations, professional societies, and corporate supporters that are raising awareness, speaking out for patients and advocating for policies that align with Patients Rising’s founding mission:
We help overwhelmed patients living with chronic and life-threatening illnesses and their caregivers gain the clarity, confidence, and tools they need to understand their health access challenges, navigate an increasingly complicated health care system and ultimately lead others to do the same by sharing their stories.
Our vision is a world where no patient is deprived of access to the treatments they need when they need them.
Founded in 2015, Patients Rising is a Washington, DC-based 501(c) (3) non-profit organization that works to fill a void in the debate over patient access to quality medical care. Our mission is to speak for patients, especially those with life-threatening diseases and chronic conditions, regarding the matters that most affect them – from access to state-of-the-art diagnostics and genetic testing to being treated with the medicines prescribed by their physician as the most effective for their specific disease and individual characteristics. As such, Patients Rising is proud to work in collaboration with professional societies, other advocacy organizations and think tanks to amplify the patient’s voice on such issues as access to care, lower out of pocket costs, and restrictive insurer practices that limit or delay access to quality care. We also articulate the patient’s voice in advocating for policies that ensure patients are able to participate in a robust decision-making process with their health care team on the most appropriate treatment options based on their preferences and needs.
To achieve these goals, Patients Rising receives educational grants from a number of corporate supporters, which fund the organization’s programs and initiatives. None of the organization’s programs or positions are influenced in any way by our funders.
Our partners and supporters enhance our ability to help patients across disease states, strengthen our conversations with stakeholders in all sectors of the healthcare system – patients, caregivers, health professionals, researchers, payers, innovators, regulators and legislators – and create the multiplier effect so the voices of patients will be heard.
In essence, our partners and supporters are valued members of the Patients Rising community. Their generous financial and in-kind support allowed Patients Rising to open its doors in 2015 and continues to help us advocate for sensible approaches that will ensure patients — regardless of who they are and where they live — have access to the right treatment, right now.
For more information about partnering or supporting Patients Rising, please contact:
Terry Wilcox: Ph: 202.904.2462 | Email
The Bonnie J. Addario Lung Cancer Foundation (ALCF) is one of the largest philanthropies (patient-founded, patient-focused, and patient-driven) devoted exclusively to eradicating Lung Cancer through research, early detection, education, and treatment. The Foundation’s goal is to work with a diverse group of physicians, organizations, industry partners, individuals, patients, survivors, and their families to identify solutions and make timely and meaningful change and turn lung cancer into a chronically managed disease by 2023.
The Alliance for the Adoption of Innovations in Medicine (Aimed Alliance) is a tax-exempt, not-for-profit organization that promotes the improvement of health care in the United States by supporting the development of and access to safe and novel, evidence-based treatments and technologies.
Cancer Connect is the largest social community and cancer information resource exclusively for cancer patients. CancerConnect is accessed directly at CancerConnect.com or from cancer care provider and advocate websites including: Dana Farber, Memorial Sloan Kettering Cancer Center, Roswell Park Cancer Institute, The OSU James Cancer Institute, The National Ovarian Cancer Coalition, The MPNRF, and other leading advocates and cancer centers.
We’re proud to partner with Clara, a platform empowering patients and caregivers by connecting them to trials that could offer a breakthrough treatment option and bring cures closer to reality. Visit www.clarahealth.com to learn more and search for a trial.
The Community Oncology Alliance (COA) is a non-profit organization dedicated to advocating for community oncology practices and, most importantly, the patients they serve. COA is the only organization dedicated solely to community oncology where close to 70% of Americans with cancer are treated.
The International Association for the Study of Lung Cancer (IASLC) is the only global organization dedicated to the study of lung cancer. Founded in 1974, the association’s membership includes more than 5,000 lung cancer specialists in over 100 countries.
The Kidney Cancer Research Alliance (KCCure) is a grassroots organization of patients, caregivers, doctors and medical researchers dedicated to eliminating suffering and death due to kidney cancer through increased funding to accelerate research that will lead to a cure for all patients and prevent future kidney cancer diagnoses.
The American Migraine Foundation is the official resource for millions of Americans living with migraine seeking reliable information about diagnosis, treatment and advancements in research. Launched in 2010 as a patient support and advocacy effort of the American Headache Society, AMF’s mission is to mobilize a community for people living with migraine and their support networks, and to drive impactful research into the third most common and sixth most disabling disease around the globe.
Lab Tests Online is an award-winning health information web resource designed to help patients and caregivers understand the many lab tests that are a vital part of medical care. Laboratory and medical professionals, who are experts in the field, develop and review all content, including articles on lab tests, conditions/diseases, screening, patient resources, and lab test news. The site is produced by AACC, a global scientific and medical professional organization dedicated to clinical laboratory science and its application to healthcare.
Patients Alliance for Drug Safety Protections is a coalition of public health, patient advocacy, health professional and disease organizations working collaboratively to raise awareness of the importance of Risk Evaluation and Mitigation Strategies (REMS) as a tool to advance patient safety and protect public health.
Migraine is a debilitating neurological disease associated with significant personal, economic, and societal burden. Amgen and Novartis expanded their collaboration to combine their capabilities and leverage their strong heritage in neuroscience in the US and Canada to bring erenumab to more patients in need.
Celgene Corporation, headquartered in Summit, New Jersey, is a patient-focused integrated global biopharmaceutical company engaged primarily in the discovery, development and commercialization of novel therapies for the treatment of cancer and inflammatory diseases through gene and protein regulation.
Amgen is one of the world’s leading biotechnology companies. Amgen is a values-based company, deeply rooted in science and innovation to transform new ideas and discoveries into medicines for patients with serious illnesses.
LifePlan provides the resources to help you manage your financial and legal well-being, so you can move on to better things.
The world’s largest research-based pharmaceutical company. Pfizer Inc discovers, develops, manufactures and markets leading prescription medicines and many of the world’s best-known consumer brands.
Allergan, headquartered in Dublin, Ireland, is a bold, global pharmaceutical company. Allergan is focused on developing, manufacturing and commercializing branded pharmaceuticals, devices and biologic products for patients around the world.
Allergan markets a portfolio of leading brands and best-in-class products for the central nervous system, eye care, medical aesthetics and dermatology, gastroenterology, women’s health, urology and anti-infective therapeutic categories.
Janssen United States employs more than 30,000 people working hard to prevent, treat, cure and stop some of the most devastating and complex diseases of our time. Fromheart disease to HIV, Alzheimer’s disease to cancer, they are committed to issues that touch everyone’s lives.
At Takeda Oncology our mission remains constant — We endeavor to deliver novel medicines to patients with cancer worldwide through our commitment to science, breakthrough innovation and passion for improving the lives of patients.
And, we are working every day to achieve our aspiration — By concentrating the power of leading scientific minds and the vast resources of a global pharmaceutical company, we are finding innovative ways to improve the treatment of cancer.
Frank and Katherine Price
Terry and Jonathan Wilcox
In Kind Support
WOMEN Magazine is a quarterly print publication and a comprehensive online health and wellness resources for women. Whether you are interested in learning more about common health conditions, exploring nutrition and exercise topics, or educating yourself about issues related to cancer treatment or other specific health concerns, you’ll find what you’re looking for at AWoman’sHealth. By integrating the most recent research on a broad variety of health topics with personal stories and inspiration from real women, we deliver a unique resource dedicated to empowering and informing our readers.
For more information on corporate membership or general support for Patients Rising’s programs, please contact Melanie Marconi at Email.
Our Supporters include everyone who contributed over the past 12-months.