Collective action is the cornerstone of how Patients Rising addresses the education and advocacy needs of patients seeking access to quality care for a serious disease or illness. We work in partnership with individuals, non-profit organizations, professional societies, and corporate supporters that are raising awareness, speaking out for patients and advocating for policies that align with Patients Rising’s founding Mission and Vision.
Founded in 2015, Patients Rising is a Washington, DC-based 501(c) (3) non-profit organization that works to fill a void in the debate over patient access to quality medical care.
Our partners and supporters enhance our ability to help patients across disease states, strengthen our conversations with stakeholders in all sectors of the healthcare system – patients, caregivers, health professionals, researchers, payers, innovators, regulators and legislators – and create the multiplier effect so the voices of patients will be heard.
Our partners and supporters are valued members of the Patients Rising community. Their generous intellectual, financial and in-kind support allowed Patients Rising to open its doors in 2015 and continues to help us advocate for sensible approaches that will ensure patients – regardless of who they are and where they live – have access to the right treatment, right now.
The Global Healthy Living Foundation (GHLF) advocates for improved access to care at the community level, amplifying education and awareness efforts within its social media framework. Central to this advocacy are GHLF’s successes educating about the importance of diagnosis, early and innovative medical intervention, long-term lifestyle improvement with the goal of improved outcomes.
The Bonnie J. Addario Lung Cancer Foundation (ALCF) The Bonnie J. Addario Lung Cancer Foundation (ALCF) is one of the largest philanthropies (patient-founded, patient-focused, and patient-driven) devoted exclusively to eradicating Lung Cancer through research, early detection, education, and treatment. The Foundation’s goal is to work with a diverse group of physicians, organizations, industry partners, individuals, patients, survivors, and their families to identify solutions and make timely and meaningful change and turn lung cancer into a chronically managed disease by 2023. The ALCF was established on March 1, 2006 as a 501c(3) non-profit organization and has raised over $30 million for lung cancer research and related programs.
The Alliance for the Adoption of Innovations in Medicine (Aimed Alliance) is a 501(c)(3) not-for-profit health policy organization. The mission of Aimed Alliance is to protect and enhance the rights of health care consumers and providers. The vision of Aimed Alliance is a society in which consumers, in consultation with their health care providers and loved ones, can make informed and individually appropriate decisions about their health care, and those decisions are not overridden by third parties.
Cancer Connect combines original content and news with expert doctor commentary from many leading health providers with editor curated content from the web to ensure our users have access to the most relevant and through educational content available to support their decision making. By combining information with a social community Cancer Connect provides cancer patients and their caregivers a unique destination to seek information, support, and inspiration.
We’re proud to partner with Clara, a platform empowering patients and caregivers by connecting them to trials that could offer a breakthrough treatment option and bring cures closer to reality. Visit www.clarahealth.com to learn more and search for a trial.
The Community Oncology Alliance (COA) is a non-profit organization dedicated to advocating for community oncology practices and, most importantly, the patients they serve. The Community Oncology Alliance is the only organization dedicated solely to community oncology where close to 70% of Americans with cancer are treated.
The International Association for the Study of Lung Cancer (IASLC) is the only global organization dedicated to the study of lung cancer. Founded in 1974, the association’s membership includes more than 5,000 lung cancer specialists in over 100 countries.
The Kidney Cancer Research Alliance (KCCure) is a grassroots organization of patients, caregivers, doctors and medical researchers dedicated to eliminating suffering and death due to kidney cancer. They increase funding to accelerate research hopefully leading to a cure for all patients and prevent future kidney cancer diagnoses.
The American Migraine Foundation is the official resource for millions of Americans living with migraine seeking reliable information about diagnosis, treatment and advancements in research. Launched in 2010 as a patient support and advocacy effort of the American Headache Society, AMF’s mission is to mobilize a community for people living with migraine and their support networks, and to drive impactful research into the third most common and sixth most disabling disease around the globe.
Lab Tests Online is an award-winning health information web resource designed to help patients and caregivers understand the many lab tests that are a vital part of medical care. Laboratory and medical professionals, who are experts in the field, develop and review all content, including articles on lab tests, conditions/diseases, screening, patient resources, and lab test news. The site is produced by AACC, a global scientific and medical professional organization dedicated to clinical laboratory science and its application to healthcare.
NeedyMeds is a 501(c)(3) national non-profit information resource dedicated to helping people locate assistance programs to help them afford their medications and other healthcare costs. They educate and empower those seeking affordable healthcare. NeedyMeds achieves its mission by providing information on healthcare programs, offering direct assistance and facilitating programs. They are funded by small grants, donations, sponsorships, subscriptions to PAPTracker, and syndication of some of our database information. NeedyMeds also works with the patient assistance programs of several pharmaceutical distributors.
Savvy Cooperative empowers patients to use their experiences to create positive change. They do this by giving patients direct ways to share their experiences with health innovators and by advocating that they be fairly compensated for their contributions. Savvy Cooperative empowers patients to co-create new solutions, gives them a sense of purpose and helps them make money.
Patients Rising engages patient communities, physicians, allied health professionals and policy experts in a variety of ways. Together we have solution-oriented discussions to create lasting impact on the future of healthcare in the United States.
To accomplish our mission, we run a number of different programs:
This program gives a platform to patients from which they advocate for the needs of their community. Patients share their knowledge, experience and present the true challenges of living with chronic and life-threatening illnesses. Voices of Value publishes patients’ advocacy to our website’s blog and to numerous social media channels.
This program engages patients and experts from different fields to share vital information on a variety of topics, such as:
Patients Rising University creates webinars, videos, podcasts, conducts interviews and creates educational articles and materials.
We provide a toll-free number and an email address so patients can reach out with questions about all-things healthcare. Our advocates provide answers or direction towards answers.
To realize these programs, Patients Rising seeks and receives unrestricted educational grants from diverse corporate supporters. None of Patients Rising’s programs or positions are influenced in any way by our donors.
Our Supporters include companies who contributed over the past 12-months — updated quarterly.
For more information on corporate membership or general support for Patients Rising’s programs, please contact Melanie Marconi at Email.
Migraine is a debilitating neurological disease associated with significant personal, economic, and societal burden. Amgen and Novartis expanded their collaboration to combine their capabilities and leverage their strong heritage in neuroscience in the US and Canada to bring treatments to migraine patients in need.
Celgene Corporation, headquartered in Summit, New Jersey, is a patient-focused integrated global biopharmaceutical company engaged primarily in the discovery, development and commercialization of novel therapies for the treatment of cancer and inflammatory diseases through gene and protein regulation.
Amgen is one of the world’s leading biotechnology companies. Amgen is a values-based company deeply rooted in science and innovation. They transform new ideas and discoveries into medicines for patients with serious illnesses.
LegalZoom’s LifePlan provides resources to help patients manage their financial and legal well-being. LifePlan includes in-kind donations through provided services, including Power of Attorney, Living/Last Will, Trusts, financial planning and Identification protection.
The world’s largest research-based pharmaceutical company. Pfizer Inc discovers, develops, manufactures and markets leading prescription medicines and many of the world’s best-known consumer brands.
The Pharmaceutical Companies of Johnson & Johnson, Janssen fights ‘sickness with science, improves access with ingenuity, and heals hopelessness with heart’. They focus on areas of medicine where they can make the biggest difference: Cardiovascular & Metabolism, Immunology, Infectious Diseases & Vaccines, Neuroscience, Oncology, and Pulmonary Hypertension.
Takeda Oncology endeavor to deliver novel medicines to patients with cancer worldwide through their commitment to science, breakthrough innovation and passion for improving the lives of patients. They combine leading scientific minds with their global resources to find innovative ways to improve cancer treatment.
Terry and Jonathan Wilcox
Amazon Smile – AmazonSmile is a website operated by Amazon that lets customers enjoy the same wide selection of products, low prices, and convenient shopping features as on Amazon.com. The difference is that when customers shop on AmazonSmile (smile.amazon.com), the AmazonSmile Foundation will donate 0.5% of the price of eligible purchases to the charitable organizations selected by customers.
Frank and Katherine Price
Google AdWords: Get results, like clicks to your website or calls to your business.
WOMEN Magazine is a quarterly print publication and a comprehensive online health and wellness resources for women. They discuss common health conditions, nutrition, exercise, cancer and other health concerns. By integrating research with personal stories and inspiration from real women, they deliver a unique platform.